Happy Easter everyone!!! Well, the marathon is just 1 day away. I had a wonderful, inspiring evening last night at the Running for Rare Diseases Team dinner at Genzyme. I was delighted to spend time with two HCU families, the Nelson’s (Maeve’s family) and the Hummel’s (Will’s family) as well as some amazing members of the rare disease community.
Will was my patient partner last year, and is back in Boston with his family to help cheer me on this year. I made a promise to Will last year that I would cross the finish line of the Boston Marathon in his honor. Tomorrow, I WILL do that. Will is my 26th HCU Hero, and I’m dedicating my last mile of the 2014 Boston Marathon to him!
To my surprise, Will was one of the speakers last night. He stood up in front of a room full of people and spoke about HCU and what it means to him to have someone run a marathon In his honor. I was so impressed! I am so very proud of you, Will – you truly are a HCU Hero!
To read more about Will’s HCU story, please check out these links:
Here are some photos of Will, his family, and my family from last year’s race:
If you’d like to make a donation in honor of Will Hummel, or another HCU Hero, please visit my fundraising page for the 2014 Boston Marathon: