Month: January 2019

Nathan, was born with HCU, but was not diagnosed with the disorder at birth.  Fortunately, he is B-6 resposive – meaning his levels can be controlled with high doses of B vitamins, but it wasn’t until he started developing eye problems that he was tested for the disorder, and began treatment.  I’m thrilled to have my…

Leah was part of the team of HCU Heroes for my 2014 Boston Marathon and I’m thrilled to dedicate another mile to her in the 2019 Miami Half Marathon!  Leah was diagnosed with HCU as a newborn in the state of Alabama, and started treatment as a baby. She is B6 non-responsive and has both…

The following heartfelt blog post was written by Amanda Edwards about her sons Gavin and Zakie. Tragically, Zakie passed away a few months ago due to complications of HCU.  He was just 8 years old.  My heart goes out to this family and I’m extremely honored to dedicate one of my miles to Gavin and one of my miles in…

Happy New Year!  I hope your 2019 is off to a great start.  I thought I’d fill you in on a few of my goals for this year & give you a long overdue update on my progress for Miami.  It’s hard to believe the race is just 2 weeks away! First, let’s discuss goals.  A few years…