Fueled by Formula, Fruit, Veggies and Heart
This is my last blog post before the “big race” tomorrow! My race gear is all laid out. I’m rested, hydrated, carb-loaded, and ready to cross the finish line and become #MiamiFamous. Thank you all who have continued to donate and support my fundraising efforts for HCU Network America. As of today, $6576 has been…
Well the time has come, I’m off to Miami today! I’m excited to bring awareness to HCU by running the Miami Half Marathon and I’m also elated to be escaping this cold winter weather – even if just for a few days! Here’s a sky video of the race from a few years ago to give you…
Meet Samantha, the latest HCU Hero on the Miami Half Marathon team! Samantha’s Mom, Amber, shares their family’s HCU journey: Samantha Gibson was born June 2, 2015. Her newborn screen found her elevated homocysteine and was diagnosed with Homocystinuria around September 2015. Her first year was great and her levels were where…
I’m thrilled to share that Xander and Max from Barnsley, South Yorkshire, UK are back as part of the team of HCU Heroes for the 2019 Miami Marathon! When I first shared their story, the Tattersall family was just beginning their HCU journey. My how much has changed in the last few years! In the UK,…
Nathan, was born with HCU, but was not diagnosed with the disorder at birth. Fortunately, he is B-6 resposive – meaning his levels can be controlled with high doses of B vitamins, but it wasn’t until he started developing eye problems that he was tested for the disorder, and began treatment. I’m thrilled to have my…
Well, after weeks of hemming and hawing, and several conversations with family members and running buddies. I finally made a decision about the weekend of October 8th/9th. Instead of running the Army 10 miler on Sunday as planned, or running with Fleet Feet for a 20 mile long run on Saturday, I will be…
Time is flying this summer – there’s so much to catch you up on from the last 3 weeks including my introduction to a few new things: Yasso’s 800’s, Pokémon GO, and The Silencer! First, I’m happy to report that my marathon training is going really well. The decision to join the Fleet Feet Marathon…
On Friday night, I had the opportunity to connect with my patient partner for the NYC Marathon. Her name is Noah. She is 19 years old, and was born with an extremely rare disorder called Abetalipoproteinemia, or ABL for short. She’s also been experiencing some other symptoms, and is undergoing testing at NIH in their…
Yesterday was my first hill workout with Fleet Feet, and I will admit I wasn’t exactly excited about it. In fact, I was outright dreading the workout. In the past, hill training is something I’ve skipped in my marathon preparation, and it’s been a weakness in my past races. I’ve almost always walked…
This morning my alarm went off at 5AM, and rudely interrupted what had been a very peaceful sleep. I hit my snooze button repeatedly for about 30 minutes, until I finally dragged myself out of bed, and started my routine of getting ready for my first Saturday morning long run with Fleet Feet. It took my…