Skip to content

The Rare Runner

Fueled by Formula, Fruit, Veggies and Heart

Menu
  • About Me
  • My Race Calendar
  • Rare Disease Links
  • Running Links
Menu

Author: therarerunner

Marathon Training – Day 1

Posted on June 24, 2016 by therarerunner

In the past, I’ve done most of my marathon training solo.  But, since I haven’t been running consistently on my own the past few months, I decided I needed a little extra push to keep me on track.  It was time to mix things up, and get out of my comfort zone.  So, I signed…

Read more

Hello…It’s Me…

Posted on June 7, 2016 by therarerunner

I must have blogged a thousand times…in my head over the last year and a half. I feel so guilty about letting the blog go, but it was necessary for my sanity.  You see, I didn’t know it at the time of my last post, but a big life changing event was on the horizon….

Read more

Hello Again

Posted on November 18, 2014 by therarerunner

Hello again, long time no post!  If you’ve missed me – good news – the blog is making a comeback! I can’t believe it’s been over 7 months since I crossed the finish line of the 2014 Boston Marathon!  Thank you all again for the amazing support leading up to that event.  I can’t begin…

Read more

HCU HEROES – 26 Miles for 26 Heroes!

Posted on April 15, 2014 by therarerunner

6 days and counting until the 2014 Boston Marathon!!!  I’m so excited to be running in honor of these 26 amazing HCU Heroes! If you’d like to make a donation to NORD’s HCU restricted research fund in honor of these amazing HCU Heroes, please stop by my fundraising page for the 2014 Boston Marathon: http://www.firstgiving.com/fundraiser/kristinrapp/bostonmarathon2014

Read more

HCU Heroes – Ariella’s Story

Posted on April 13, 2014 by therarerunner

The following blog post was written by Joy Brown about her daughter, Ariella, who was diagnosed with HCU at the age of 12.  Joy reached out to me this week to share Ari’s story.  I was so touched to read Joy’s words about the challenges Ari has faced, and I am SO very honored to dedicate one of my 2014 Boston…

Read more

RAISE A GLASS FOR RARE DISEASES!!!

Posted on April 10, 2014 by therarerunner

I’m hosting a FUNdraiser at Flanagan’s Harp and Fiddle tomorrow night (April 11th) from 7PM to close!!! Come out at celebrate with friends and family to help raise money for the National Organization of Rare Disoders (NORD). Enjoy live music by The DCeivers, a raffle, some good eats, and plenty to drink – all while raising…

Read more

HCU Heroes – Jacob’s Story

Posted on April 6, 2014 by therarerunner

The following blog post was written by Tammy MacNicol about her son, Jacob. Jacob was the first child diagnosed with HCU in Queensland, Australia following the start of newborn screening there.  Tammy is very active in the HCU community, and is the creator of the Facebook Support group: Homocystinuria Support is available!!!  I know many…

Read more

HCU Angels – Miles in Memory – Judy & Susie’s Story

Posted on April 5, 2014 by therarerunner

  The story I’m sharing today is one that I’ll be thinking of when I tackle the toughest part of the Boston Marathon course – Heartbreak Hill and the “Haunted Mile“.  Most people have heard about the infamous Hearbreak Hill, but it’s actually not as steep a hill as you might imagine.  What makes it so…

Read more

HCU Heroes – Blake’s Story

Posted on April 3, 2014 by therarerunner

The following blog post was written by Kath Fricke about her son Blake.   Blake was the first child diagnosed with HCU in Victoria, Australia following the start of newborn screening there.  Kath is very active in the HCU community & is a moderator on the Facebook support group: Homocystinuria Support if available!!!  I am…

Read more

The Countdown Is On – One Month To Go!!!

Posted on March 21, 2014 by therarerunner

Time is flying!  Today marks exactly one month until Marathon Monday!!!  I CAN’T WAIT!  Here’s a quick recap of the last few weeks: Fundraising & Training My fundraising has been going great! Thanks to all of you generous people, so far, I have raised a whopping $11,535 for The National Organization of Rare Disorders.  That’s…

Read more

Posts pagination

  • Previous
  • 1
  • 2
  • 3
  • 4
  • 5
  • Next

Recent Posts

  • Spring is coming…
  • Race Recap – 2019 Miami Marathon
  • Race Day Ready!!!
  • Miami Bound!
  • HCU Heroes – Kaden’s Story

Recent Comments

  1. Unknown on The Countdown Is On – One Month To Go!!!
  2. Unknown on HCU Heroes – Carson’s Story
  3. Jennie on HCU Heroes – Maeve’s Story
  4. Unknown on Veteran’s Day

Archives

  • March 2019
  • February 2019
  • January 2019
  • November 2018
  • August 2016
  • July 2016
  • June 2016
  • December 2014
  • November 2014
  • April 2014
  • March 2014
  • February 2014
  • January 2014
  • December 2013
  • November 2013
  • October 2013

Categories

  • Uncategorized
© 2025 The Rare Runner | Powered by Superbs Personal Blog theme