In the past, I’ve done most of my marathon training solo. But, since I haven’t been running consistently on my own the past few months, I decided I needed a little extra push to keep me on track. It was time to mix things up, and get out of my comfort zone. So, I signed…
Author: therarerunner
Hello…It’s Me…
I must have blogged a thousand times…in my head over the last year and a half. I feel so guilty about letting the blog go, but it was necessary for my sanity. You see, I didn’t know it at the time of my last post, but a big life changing event was on the horizon….
Hello Again
Hello again, long time no post! If you’ve missed me – good news – the blog is making a comeback! I can’t believe it’s been over 7 months since I crossed the finish line of the 2014 Boston Marathon! Thank you all again for the amazing support leading up to that event. I can’t begin…
HCU HEROES – 26 Miles for 26 Heroes!
6 days and counting until the 2014 Boston Marathon!!! I’m so excited to be running in honor of these 26 amazing HCU Heroes! If you’d like to make a donation to NORD’s HCU restricted research fund in honor of these amazing HCU Heroes, please stop by my fundraising page for the 2014 Boston Marathon: http://www.firstgiving.com/fundraiser/kristinrapp/bostonmarathon2014
HCU Heroes – Ariella’s Story
The following blog post was written by Joy Brown about her daughter, Ariella, who was diagnosed with HCU at the age of 12. Joy reached out to me this week to share Ari’s story. I was so touched to read Joy’s words about the challenges Ari has faced, and I am SO very honored to dedicate one of my 2014 Boston…
RAISE A GLASS FOR RARE DISEASES!!!
I’m hosting a FUNdraiser at Flanagan’s Harp and Fiddle tomorrow night (April 11th) from 7PM to close!!! Come out at celebrate with friends and family to help raise money for the National Organization of Rare Disoders (NORD). Enjoy live music by The DCeivers, a raffle, some good eats, and plenty to drink – all while raising…
HCU Heroes – Jacob’s Story
The following blog post was written by Tammy MacNicol about her son, Jacob. Jacob was the first child diagnosed with HCU in Queensland, Australia following the start of newborn screening there. Tammy is very active in the HCU community, and is the creator of the Facebook Support group: Homocystinuria Support is available!!! I know many…
HCU Angels – Miles in Memory – Judy & Susie’s Story
The story I’m sharing today is one that I’ll be thinking of when I tackle the toughest part of the Boston Marathon course – Heartbreak Hill and the “Haunted Mile“. Most people have heard about the infamous Hearbreak Hill, but it’s actually not as steep a hill as you might imagine. What makes it so…
HCU Heroes – Blake’s Story
The following blog post was written by Kath Fricke about her son Blake. Blake was the first child diagnosed with HCU in Victoria, Australia following the start of newborn screening there. Kath is very active in the HCU community & is a moderator on the Facebook support group: Homocystinuria Support if available!!! I am…
The Countdown Is On – One Month To Go!!!
Time is flying! Today marks exactly one month until Marathon Monday!!! I CAN’T WAIT! Here’s a quick recap of the last few weeks: Fundraising & Training My fundraising has been going great! Thanks to all of you generous people, so far, I have raised a whopping $11,535 for The National Organization of Rare Disorders. That’s…