The Rare Runner

I’m thrilled to share that Xander and Max from Barnsley, South Yorkshire, UK are back as part of the team of HCU Heroes for the 2019 Miami Marathon!  When I first shared their story, the Tattersall family was just beginning their HCU journey.  My how much has changed in the last few years! In the UK,…

I met Alexa’s family at last spring’s HCU Conference in Boston, and I was very touched by their story.  Alexa’s Mom, Erika,  started noticing something was wrong with her when she was 2 years old.  She wasn’t reaching the normal milestones, but it wasn’t until she was 4 years old that they received the official diagnosis of Homocystinuria (HCU) due to her dislocated lens….

Nathan, was born with HCU, but was not diagnosed with the disorder at birth.  Fortunately, he is B-6 resposive – meaning his levels can be controlled with high doses of B vitamins, but it wasn’t until he started developing eye problems that he was tested for the disorder, and began treatment.  I’m thrilled to have my…

Leah was part of the team of HCU Heroes for my 2014 Boston Marathon and I’m thrilled to dedicate another mile to her in the 2019 Miami Half Marathon!  Leah was diagnosed with HCU as a newborn in the state of Alabama, and started treatment as a baby. She is B6 non-responsive and has both…

The following heartfelt blog post was written by Amanda Edwards about her sons Gavin and Zakie. Tragically, Zakie passed away a few months ago due to complications of HCU.  He was just 8 years old.  My heart goes out to this family and I’m extremely honored to dedicate one of my miles to Gavin and one of my miles in…

Happy New Year!  I hope your 2019 is off to a great start.  I thought I’d fill you in on a few of my goals for this year & give you a long overdue update on my progress for Miami.  It’s hard to believe the race is just 2 weeks away! First, let’s discuss goals.  A few years…

It’s been over 2 years since my last post, but I’ve decided to revive the blog as I will be running another marathon in January.  More on that later, but first, I thought I’d do a quick trip down memory lane.  During my last blog post, I mentioned the Hartford Marathon.  Well, I did make it to Hartford, but…

Well, after weeks of hemming and hawing, and several conversations with family members and running buddies.  I finally made a decision about the weekend of October 8th/9th.   Instead of running the Army 10 miler on Sunday as planned, or running with Fleet Feet for a 20 mile long run on Saturday, I will be…